Stronger Together
A toolkit and information resource by patients for patients to help those living with Inflammatory Bowel Disease.
This helpful resource is brought to you by the Patient Advisory Council of ImproveCareNow.
Get the information you need.
Get the information you need.
Your personal resources here.
Health Literacy Toolkit
Education on IBD related health topics, including medications, common tests, and a glossary of common IBD terms.
Lifestyle Toolkit
An interactive webpage about IBD and social life, coping with treatment, mental health, and more.
Nutrition and IBD Toolkit
Nutrition tips and ideas + working with an expert as part of treatment and management.
Travel Toolkit
Stories and helpful techniques for travelers with Crohn’s disease and Ulcerative Colitis.
Disordered Eating Toolkit
Get expert advice about disordered eating behavior in IBD patients and ways to help.
College and IBD Toolkit
Helpful resources to make the process of transitioning to college with IBD less stressful.
Accommodations Toolkit
Available accommodations for IBD patients to make life easier and less stressful.
More resources for you
Toolkits
Lifestyle Toolkit
An interactive webpage about IBD and social life, coping with treatment, mental health, and more.
Health Literacy Toolkit
Education on IBD related health topics, including medications, common tests, and a glossary of common IBD terms.
Crohn’s and Colitis Storybook
Helpful perspectives, self-care, and education from others living with IBD.
Accommodations Toolkit
Available accommodations for IBD patients to make life easier and less stressful.
College and IBD Toolkit
Helpful resources to make the process of transitioning to college with IBD less stressful.
Disordered Eating Toolkit
Get expert advice about disordered eating behavior in IBD patients and ways to help.
Materials on this webpage are created by members of the ImproveCareNow Community. Do not rely on the information in these documents or resources to diagnose or treat any health condition. This information does not constitute medical advice and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. All disclaimers found on this page apply to documents on this webpage.
Supporting Each Other
Living with Inflammatory Bowel Disease is hard enough. Doing it alone is even harder. The Patient Advisory Council in partnership with ImproveCareNow has created this resource for young people to be educated and empowered. By sharing ideas, tips, and resources, we become a force of knowledge against IBD. As a voice for IBD patients, PAC members contribute to research studies to improve health care innovations and develop better treatments for all of us.
Let’s rely on each other because we’re stronger together.
Featured Posts
This study characterized the explanatory models used by pediatric gastroenterologists when explaining inflammatory bowel disease (IBD) to children.
Pediatric inflammatory bowel disease (IBD) is a chronic illness with various treatments, including ostomy surgery. Ostomy‐related medical decision‐making (MDM) is complex for multidisciplinary healthcare professionals (HCPs). This study sought to understand national multidisciplinary HCPs' perceptions about pediatric IBD ostomy surgery in the United States.
Hi, my name is Emily and I was diagnosed with Crohn’s disease in December of 2023. Something interesting about me is that I met my idol, the voice actor of Ahsoka Tano from Star Wars, Ashley Eckstein. I joined the PAC in February 2024.
Crohn’s and anxiety - it’s an endless battle.
Feb 22, 2024
My name is Maddie and I was diagnosed with Crohn’s Disease when I was 13 years old. I’ve been a part of the ICN network for almost 8 years, and I transitioned from my role as PAC Co-Chair a year ago. Now I have the opportunity to share my passion project with the ICN community! Introducing: EATS for IBD™
ImproveCareNow (ICN) believes that when patients and caregivers are true partners in the design and delivery of their IBD care, we can achieve even better outcomes. One way our learning health network fosters this commitment to partnering with our pediatric IBD families is through our Community Conference scholarship program. Scholarships allow patients and/or caregivers to attend our in-person meetings at no cost to them.
Partnering for better pediatric IBD outcomes
Jan 25, 2024
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